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betty cooper - Fri May 16 08:45pm
Location: gas city, indiana
my heart goes out to you and your family. i'm 5 months pregnant and just found out that my unborn child has anencephaly and i'm scared not for me but for him. would love to hear from you thank you for your time betty

amyb - Sun Apr 27 01:22pm
Location: missouri
your strength amazes me. i'm sorry, i'm not good with words, and well, your family is beautiful, and i am so sorry for your loss.

Raquel - Mon Mar 24 06:49pm
Location: North Liberty, IN
Amy, Mike, & Alex... What a beautiful tribute... know you are always in my prayer

michelle - Tue Mar 11 04:15pm
Location: valparaiso in 46383
what a wonderful video of the tribute to your daughter

Tiffani Wallace - Wed Jan 30 05:05pm
Location: Peru, IN 46970
Amy, she's beautiful!!! I've thought about you often!!!

Susan Huddleston - Wed Dec 19 03:35pm
Location: Lafayette, Indiana 47909
Amy, Mike, Alex, what a beautiful tribute to Lydia.I love all of you and if there is anything I can do please let me know. Thanks for the jar of goodies. I will share them with my grandchildren. Blessings and my prayers, Susan Huddleston

Sha nnon - Mon Dec 17 10:24pm
Location: Little Rock, AR
Thank you for sharing this with us. I lost Olivia Faith on Sept. 6 of this year to anencephaly. I delivered her at 36 weeks. She lived 1 hour and 20 minutes. She was 3lbs. 13 oz. I know the pain you are in right now. It does ease up as time passes but it always hurts. The book "Tear Soup" has helped me. It's a children's picture book. We are also a part of a wonderful church family and have been blessed with the support of so many. I want to encourage you to not pull back too far even though you might just want to pull the covers up over your head (and that's ok some days!)After we lost Olivia it was really hard to figure out how to re-enter my life. I felt like so much had happened, yet it seemed like someone had hit rewind and I was back to before I had been pregnant, only everything was different. That may or may not make sense right now. Please email me if you need anything or if you just need to vent. I'm here. Much love, Shannon

Location: Scotland, UK
I'm so sorry Lydia had to leave you so soon. No words can heal the pain you are in, but take comfort in the fact that Lydia is at peace and is watching over you xxx

Stefani Roach - Fri Dec 14 10:20pm
Location: Lafayette,IN 47905
Hi Amy this is Stefani,Jaime's friend (I was at Caleb's birthday party). Jaime had shared your story with me and I have now shared your awesome testimony of faith with others. I know the Lord is using your little Lydia to reach out to the hearts of others I am fairly certain are not saved. Lydia may have only graced this earth for 28 minutes but her spirit and the Lord's love for all of us lives on forever. May God continue to bless you, Mike and Alex. Please do not feel obligated to respond. I read you blog post and your husband is absolutely right. You should take this time to rest and to "heal" with your family. Just know you and your family are thought of often and in many prayers.

Mary Kay Longacre - Fri Dec 14 10:19pm
Location: Goshen, In 46526
Amy, Mike, Alex, and Lydia, You have been in my thoughts and prayers much lately. Lydia is experiencing a calm and gentle peace and Amy, Mike, and Alex, you will get through this together with the grace of God and Lydia watching over all of you. Please take care of each other and know that you will always be in my thoughts and prayers. Mary Kay Longacre

Meagan - Fri Dec 14 07:12pm
Location: ladera ranch Ca
What a beutiful video. I cried throught the whole thing. Lydia IS beautiful. I will be praying for you and keeping your precious family in my thoughts. I just lost my son to anencephaly on nov 10th. I too have a piece of my heart missing. But I like to say that that piece of my heart left me on the day my Andrew was born and went to heaven with him. It Hurts. It hurts so badly, I have a son that just turned three last week. From your pictures it looks like your son might be the same age. What a gift our children are. i will cherish the memory of my andrew forever. And I will hold your Lydia and your family close in my heart. Maybe together we can all find some peace. All my love, Meagan

Meagan - Fri Dec 14 07:12pm
Location: lader ranch Ca
What a beutiful video. I cried throught the whole thing. Lydia IS beautiful. I will be praying for you and keeping your precious family in my thoughts. I just lost my son to anencephaly on nov 10th. I too have a piece of my heart missing. But I like to say that that piece of my heart left me on the day my Andrew was born and went to heaven with him. It Hurts. It hurts so badly, I have a son that just turned three last week. From your pictures it looks like your son might be the same age. What a gift our children are. i will cherish the memory of my andrew forever. And I will hold your Lydia and your family close in my heart. Maybe together we can all find some peace. All my love, Meagan

anna - Fri Dec 14 02:41pm
Location: uk
she is beautiful. another little star shining over us. i had a son with anencephaly. and its a comfort to think a mothers love never goes they may not be in our arms but they are in our hearts. thinking of you , take care

CieAna - Wed Dec 12 11:32pm
Location: Phoenix, Arizona
Amy, Mike, and Alex- What a beautiful video tribute to your precious baby girl- Lydia. Words can not begin to express the sorrow that I have in my heart for your loss. You have such a tremendous amount of strength and selflessness. I truly appreciate you sharing the story of Lydia's life with everyone; it will forever touch me as well as be a difficult reminder of just how precious our loved ones are. As you begin your journey of healing and reflection I know that you will keep Lydia's memory close to your hearts. When things are trying, remember to take comfort in the support and help of those around you who love you. ..."And we know that in all things God works for the good of those who love him, who have been called according to his purpose." Romans 8:28

Christina Menis - Wed Dec 12 08:55pm
Location: South Bend
Amy, Mike, and Alex-I just watched the video tribute to Lydia and just wanted to tell you what a beautiful little angel you have. I have been thinking about you and praying for your family. I wish I could have come to her memorial service, but know that I was thinking of you guys all day. Thank you for touching so many of our lives by sharing Lydia with us. My Gram sends her love as well.

Beth - Wed Dec 12 05:29pm
Location: Columbus, Ohio
Such a beautiful and moving tribute to your little angel. I am so sorry for your loss. You all look so brave through all those pictures, what special moments to have saved forever. Know you've got thoughts and prayers with you from across the miles! God Bless!

Margo Nafzgier - Wed Dec 12 03:52pm
Location: Goshen
What a beautiful tribute to your daughter. The song and pictures touched my heart and brought tears to my eyes. Even through such pain, I can see your love for each other and Lydia shinig through.

Zach - Wed Dec 12 12:39pm
Location: Kokomo, In 46901
I will keep you and your family in our prayers. I found one of the balloons that was sent off with the butterfly attached to it. Thsi story has touched my life. God Bless, Zach

Beth Gomez - Wed Dec 12 08:51am
Location: Phoenix, AZ 85054
Amy and Mike - words cannont express my sympathy, just know we are praying and thinking about you often. You all were sooo brave for Lydia and yourselves! Know you did the right thing. Be good to yourselves it will take much time to heal, but god will show you thru the path. Your life is a journey and you certainly are taking it on with great strength. We love you Beth Gomez

Clare Dungey - Wed Dec 12 03:36am
Location: England
It would help if I gave you my blog address so you could find it! It is: www.littledungey.blogspot.com I'm here if you need me. Clare Dungey xx

Sarah Kolda - Tue Dec 11 09:45pm
Location: Sout Bend, IN
What a wonderful tribute! Thank you for sharing. I am praying for you guys, that you'll continue to feel God carrying you through this impossibly hard time.

Stephanie Allen - Tue Dec 11 09:42am
Location: Crawfordsville, IN 47933
I sit here writing to you while tears run down my face. I just finished watching your video. That was absolutely beautiful. You will never know how much this has and will continue to touch my heart in places it has never been touched. As you know I my self have a 13 week old baby girl. This has left me at times with you some what speechless, but not because I didn't have things to say. I just didn't know how to say it. I know the incredible love that a child gives to us as a person. You also know that I am not usualy a computer person. I can tell you though that I have been compelled to turn it to your blog repeatedly. I can't pull myself away from what you and your family must be going through. I want you to know we will continue to keep you in our thoughts and our prayers. love Stephanie

Aaron Ballenger - Mon Dec 10 10:54pm
Location: West Terre Haute, IN
Simply Beautiful!!

Amy - Mon Dec 10 09:38pm
Location: Granger, IN
I love you too and miss you guys terribly! We have so many readers on our site that I know will be forever changed by your story. I know I have! You are a good friend and I feel lucky to know your family. We will continue to pray for all of you! You are in my heart right now!

libby - Mon Dec 10 05:26pm
Location: san jose ca
Thank you for sharing your journey with us all...

Kim Nyland - Mon Dec 10 05:10pm
Location: Zeeland/MI/49464
My husband and I also gave birth to an anencephalic baby girl in March of 2002. Kara lived for about a 1/2 hour after she was born. We also found out at our 20 week ultrasound. At that time we were given the option to induce but I couldn't do it. I felt that God had given her life and He would be the one to decide when to call her home. I treasure that time that I had with her tumbling around inside of me. God gave us the grace to walk peacefully on a very difficult journey. I pray that you will feel His presence.

Jodi - Mon Dec 10 04:35pm
Location: Mendota,Il
I pray that you feel God's arms wrapped around you right now and as your are reading this. I pray for peace for you and your family. Take Care. Jodi

Roslyn - Mon Dec 10 03:38pm
Location: Indianapolis, IN
Oh bless you all.My heart goes out to all of you. I believe that God does not mistakes, so there was/is a reason that Lydia graced your lives. I will keep your family in my prayers. May God continue to bless you all...

Margot - Mon Dec 10 03:13pm
Location: Lafayette
Dear Mike and Amy, I am so sorry for your loss. I also lost a premature baby a few years ago. The pictures from Lydia's service are beautiful. I stumbled across your blog several months ago right after you found out the sad news regarding your daughter's condition. I am thinking about your family at this difficult time.

Janessa - Mon Dec 10 02:33pm
Location: Centralia, WA
May God bless you for the honor and love you showed His little one. I pray His strength continue to support you as you grieve and deal with the millions of emotions that must come with such a gift. You are an inspiration, if that is appropriate to say. It brought tears to my eyes that you honored your son with being there too.

Candi - Mon Dec 10 10:29am
Location: Utah
Your little girl is so beautiful. I found your story on Renay's site and having just lost my daughter as well, I wanted you to know that my prayers are with you and my heart hurts for you. I know she will watch over you. What a special little spirit she must be, to be too perfect to stay here on this earth. If you ever need to talk please email me. God Bless

Lisa - Mon Dec 10 02:51am
Location: Hohenacker Germany
Mike, Amy and Alex, My heart will never forget that beautiful video tribute. Thank you for sharing it here. I have now been blessed by seeing her. A tear-filled cyber HUG to all of you. Praise God.

Angela and JayP Schabloski - Mon Dec 10 02:04am
Location: Oshkosh Wisconsin
Beautiful, what special memories to be able to have and remember. What a beautiful little life you were able to have even for just a little while.

Amy McGuire - Mon Dec 10 01:33am
Location: South Bend, IN
Thank you for continuing to share Lydia's life and story with all of us. I feel like every time I come to your website I learn a new lesson in life and love. Thank you for giving me these gifts. The video tribute is just so amazing. I just feel so privileged and proud to know you!

Mary Ann Harrold - Sun Dec 9 11:16pm
Location: Wichita, KS
Renay shared your story with me. God indeed gave special parents and a special big brother to Lydia. Renay was so right when she told me she was in the presence of an angel. The love Lydia was surrounded with in her short earthly life was so very apparent in the video. I'm praying for you!

Katie Hundt - Sun Dec 9 09:18pm
Location: Valpo, IN, 46383
Mike & Amy~ Hello. I my name is Katie and I work w/ your cousin Liz. She told me about your family and everything you have been through. I was moved by the kind of people you are and I heard you had a website so I was looking at it...your daughter was the most beautiful child I have ever seen and I told Liz for many reasons, but for the main reason of how she makes you feel. I just wanted to leave a little note and also to just reach out and give 2 strangers an internet hug :) b/c everyone needs a hug sometimes. Stay strong and if you guys are anything like Liz, I bet you're amazing. I heard Alex is quite a character and he is a cute little boy! Katie

Kendra Ford - Sun Dec 9 08:22pm
Location: Indiana
May the God of all comfort be there for you both now and in the months to come. We miss you here...It helps to know that you are surrounded by people who love you when you need it the most. Kendra

Clare Dungey - Sun Dec 9 08:05pm
Location: England
I have just found your site through Baby Avery's site and my heart aches for you. I lost my baby boy Theodore on October 10th this year, 5 hours after his birth. He had dwarfism and died (unexpectedly) of related repiritory problems. He was beautiful and I'm so proud I got to be his mummy. I have often wondered what I would have done had I known before his birth that his condition was lethal and you and Candi have helped me answer that question. I believe you did the right thing for your little girl and I'm so proud of you for seeing it through. I still feel desperate pain at the loss of my little boy but I know God will see me and you through this difficult time. Please feel free to contact me through my blog and check out the pics of my handsome little boy! Love and prayers, Clare

Stephanie Allen - Sun Dec 9 09:33am
Location: Crawfordsville, IN 47933
My family and my heart goes out to you and your family. Our thoughts are with you more than you know. We will keep you in our prayers. Always here for you if you need us even if just to talk. Wishing you and your family the best through this very hard time. Stephanie



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Take folic acid before you're pregnant.
Folic acid, a B vitamin, helps prevent birth defects of the brain and spinal cord when taken before the end of early pregnancy. It is available in most multivitamins, as a folic acid-only supplement and in some foods.
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